Plea For Help For Cheadle Heath Five-Year-Old With Rare Condition

joshua

The father of a five year old boy from Cheadle Heath is determined to fight on for his son after being told there was nothing more that could be done for him.
Joshua Burns-Adair from Cheadle Heath was given just a one in 56 million chance of being born alive.
But he defied those odds and is now five despite his condition which is a rare type of dwarfism called Jeune’s syndrome which only affects his rib cage.
Crushed
It means that compared to the rest of his body, his ribs are just a fraction of the size, and his larger internal organs are being crushed as a result.
Joshua, who attends The Valley School in Bramhall has undergone two operations to break and extend his ribs to help him breathe, and he now has two metal plates each side of his rib cage.
But doctors at the Royal Manchester Children’s Hospital have told dad Mark and partner Amanda that there’s nothing more they can do.
But after researching specialist chest hospitals, they have found three centres in the USA and Canada which they hope can help save their little boy.
Help
Mark said: “We’ve found hospitals in Philadelphia, Boston, and Montreal, and we are now in contact with doctors there to see if they can help Joshua.”
The journey to the US or Canada could cost the family more than £100,000, and a fundraising page has been set up to help raise money.
To donate to Joshua’s fund, visit www.gofundme.com/joshuaburnsadair .